Of My Gut and Other Life-Sucking Demons…

…and of a few other things. But since some time ago, I promised to tell you about the state of my tummy (and I forgot to do so *cough, cough, cough*), I figured it would be mildly polite to start with the belly. The doctors still can’t figure out what’s wrong. Not for lack of trying. I’ve lost count of the number of studies they’ve conducted: for my eyes, my stomach, my spine, my back and things I’m almost sure you rather not know about.

Remember a few weeks ago, when I freaked out about certain findings and told you that I wouldn’t share until I received clear results? Well, the pathologist found bacteria in my tummy that widened my physicians’ eyes and brought a lot of tension to my life. The kind of bacteria in question is most often found (over 90% of cases) in individuals who are moving towards the last stages of AIDS. The idea of adding an immunodeficiency disease to a body that already had so many painful things going on was worrying to say the least.

The results of the HIV test came back negative, and I am being treated for the bacteria. But the pain in my stomach hasn’t gone away… worse yet, it’s moving… which is a tad weird. I’ve been tested for everything from well-known immunodeficiency illnesses to rare strains of leprosy (go ahead, laugh; I won’t hold it against you. I certainly burst into laughter when I heard “leprosy” and me being discussed in the same sentence... in 2014. Lazarus jokes are quite appropriate, too).

In the meantime, my chronic pain continues to throw fits of jealousy. I think it hates the attention my stomach is getting. I’ve been seeing neurology and orthopedic medicine for the pain. I also have a new physical therapist, who is helping me develop new ways to exercise my sexy body without adding more pain to my already too long existing collection.

My days seem not to have enough hours in them. Hence my interactions have been of the spritz and run nature these last couple of weeks. Things might look rather gloomy, but trust me; they could be worse. I have so much to be thankful for: a husband who is always there when I need him (and more important, who is kind, loving and intelligent enough to give me space when I need him to), a group of friends who check up on me often (but don’t act like I’ve betrayed them when I need some quiet time), I have doctors who talk to me.

That last one is essential for my sanity. I’ve lost so many things due to the changes in my health: running, sitting comfortably, driving, wearing contact lenses, eating when I want, exercising when my body and brain need me to, writing longhand, reading printed books for long periods of time, cleaning my house the way I want, watching TV with my family… after losing so much, I don’t know if I could survive not having control over what happens to me medically, even if just in the tiniest of ways.

Last week, I spent hours discussing rare bacteria with a microbiologist—I was worried about being contagious, thank goodness I’m not. The doctor explained everything from history of the bacteria, to transmission, to what is known of mutations, to possible treatments (which, by the way, are risky… and really scary). 

Having this information might not offer any obvious physical healing, but knowing what’s going on (or might be going on) inside my body gives me back some of what I’ve lost. I might still bare my teeth at the fact that I can no longer drink my coffee as soon as I wake up… But understanding what Helicobacter pylori and Mycobacterium avium complex might do to my gut if I don’t follow certain behaviors and take my medications as prescribed, makes compliance quite easy to stomach.

All right, this post is getting ridiculously long, so I’ll stop here. I just wanted to keep you posted. It is important to me that you understand some of my seemingly sporadic behaviors. I know you worry about my sexy bits and that, too, helps me deal with a lot of what I’ve lost. So gracias desde el fondo de mi corazΓ³n, my Wicked Luvs. You rocketh very mucho. Now I’m off to write a bit of Lum and Darlene… Following those two around is all kinds of soothing. ♥

“Adore”, anatomical heart and lung collage, by Bedelgeuse

49 comments:

  1. You, you, you.......the rarest and most treasured woman. Only you could make me laugh when reading about bacterium whatchamacallit verily I say unto you. I am so sorry that you have to go through all of this mind numbing and wit crunching madness du jour. I am so proud of who you are and to be able to call you friend is truly humbling. Be as well as your affected sexy parts allow. Smooches and Squoozes, Oma Linda

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    1. With friends like mine, it is easy to be anything! ♥

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  2. You just spritz and run to your heart's content, despite your Helicobacter pylori and Mycobacterium avium complex. We, who adore you, will hang on every word.

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    1. I shall spritz! *yes, I just shouted those words. I hope my neighbors don't call the police!*

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  3. Holy moly, Magaly! Where could those exotic little buggers have come from? I hope that 2015 brings restored health and energy to you, dear friend.

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    1. Who knows! Maybe I brought them from the Dominican Republic and they were just waiting... or maybe I collected them during my travels... or in New York... The mystery shall remain. ;-(

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  4. My dear Magaly, you have to be the strongest person I know not to mention how very brave you are; I am in awe of how with all your going through you take the time to make all of us smile.

    I will continue to send you all the healing energies I can muster and keep you in my thoughts.

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    1. Like I told Oma, it's easy to be brave when so many great souls stand by me and with me! ♥

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  5. I was thinking about you yesterday (and stalking your FB page looking for news). I'm glad to know you have good doctor(s) on the job! And bless your sexy Piano Man for taking extra care with his fabulous wife.
    I'm wishing your doctors wisdom, and your lovely guts much healing. xoxo

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    1. *praying for wisdom and healing, too!*

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  6. Life only keeps you around if you're important to the Story. Unfortunately, if you're a Main Character, it gives you all sorts of horrible adventures. Take comfort in the fact that you're a Main Character, Lady Magaly. Then you can spend your time deciding on whether you're in a Comedy or Tragedy. Hint? Both of them have the same amounts of sex and violence, but only one gets a Sequel. It's good you're dealing with this mountain of adventures well, that your spirits are up, that things seem to be going well, if not perfectly. It's better that you can focus on what is good in your life and not what is bad. That will keep you happier in the long run. We all appreciate the heads up, and look forward to more writing in the new year. See you in the Sequel. =)

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    1. I shall read this comment to my Piano Man. I suspect it will make him grin. ;-D

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  7. Seems like 2014 was the year of stomachs behaving abominably! :( Mine went rogue this year too, but yours appears to have gone super villain! I hope there will be an answer for you soon, so you can get back to some semblance of a normal life. Bless your wonderful man for his support and love. And having doctors who will spend time to talk with you is a bonus indeed! May 2015 bring a fresh and delightful chapter for you, lovely! You are always in my thoughts! ❤

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    1. We need to subdue our tummies. Or at least make friends with them to see if they quit it already. I, too, hope 2015 will bring great things for all of us.

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  8. Do you just search for terrible things? Kidding. I am glad it was not worse and the medical community has a hand on the pulse of this.

    I just have a feeling you are going to improve soon.

    Do NOT play with armadillos. They carry leprosy.

    May your holiday will filled with the ones you love.

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    1. I think I do, lol!

      I just did a little mental dance, while visualizing the improvement you see. Fingers crossed.

      No armadillos. Or koala bears, since chlamydia is quite horrid, too.

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  9. Wow! Leave it to {sexy} you to come up with the most exotic of conditions! Please continue to follow doctor's orders and know I am thinking of you. Kudos to Piano Man ....

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    1. It seems that if I'll have something horrible, it might as well hide behind a name I can barely spell!

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  10. Think of the creepy medical stuff you can write about now!! Holding you in my heart, sending you strength and energy to power the light saber that will vanquish dangerous and unnecessary extra life forms from your sexy, talented existence. Big, big love!!!! ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️

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    1. How you know me, Sharon! I already wrote two stories using some of the information, lol!

      You and your mom have been in my thoughts... ♥

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  11. You are an amazing woman, Magaly, and I hope by this time next year everything will have been identified and cleared up. Being on the medical treadmill is no fun but you sound as if you are managing, sigh. Thinking of you and wishing you a peaceful pain free Christmas from the bottom of my heart, love & hugs, Francie

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    1. Let's hope the holiday season will bring great things to my tummy and your thumb!

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  12. While most are satisfied with buying a bouquet of blooms you must needs grow one inside! How many can manage that? (off to goggle multi syllable words)

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    1. I'm gifted like that. I've been thinking about contacting the head bacterium and telling that he needs to charge his people taxes and then pay me. I'm not housing freeloaders!

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  13. strength, power, perseverance, all in your christmas stocking, Magaly ~

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  14. Sounds like they are putting you through the ringer but I do so love the fact they are explaining things to you and taking the time to put your mind at ease. I hope they can pin point the cause and find you a cure very soon!! <3

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    1. Those are my hopes, too. And the doctors' (I hope).

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  15. *hugs* You're tougher than rare and ancient diseases.But perhaps you better lay off wrestling komodo dragons for the time being. I hear they carry really funky stuff. There will be better days ahead.

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    1. The list grows: no komoto dragons, no armadillos and no koala bears. ;-D

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  16. Not knowing is the very very worst, though the rest of all that sounds pretty uck too--I hope the new year brings you both clarity and healing, Magaly--and thanks for all your gifts of the spirit--my world is so much cooler with you in it.

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    1. My world is way cooler with me in it, too. So we'll try to keep it that way. ;-D

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  17. You are so tough that it takes multiple ailments to bring you down even the slightest notch. once again, I know nothing but hearing about the whole gut thing and bacteria...how well read are you on GMOs? If you don't already try to keep them out of your diet, you might try going organic or non-GMO verified at the least. /also, no packaged food. anything with corn, soy, beet sugar, canola, cotton products in them unless they are organic or non-GMO verified are guaranteed to be GMO. lots of material out there about gut problems connected to GMOs.

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    1. Not much correlation between GMOs and MAC that I've been able to find. But I've been staying from frozen things and packaged things since the problems first started. Can't be too careful. I will continue reading. If you run into some info, do send it my way...

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  18. Magaly, thank you for keeping us informed ;o) I don't know what to say? Holy crap girl! Magaly, do you take probiotics? Not saying that it would cure you, but it's something I started, after I was ill and I will never stop! There are lower dosages and higher dosages. I take it in pill form and one of the lower dosages. Something that might help? If you aren't taking it. Magaly, 2015 is going to be amazing for both of us! Yes it is! Mom is going to be making you chilli ;o) LOL! Love you my friend and sending you many prayers ;o) Give your man a hug for me too ;o)

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    1. I don't take it as a supplement, but I consume it quite a bit in yogurt. It's soothing for my belly.

      Chili!!!

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  19. Guess a simple H.pylori infection was not good enough for you, eh? ^^

    Jokes aside, I hope they find a way to fix everything that needs fixing really soon.

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    1. It seems that my gut is not into keeping it simple. I might have to slap her a bit.

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  20. Well, I know very little about diagnoses but I do know that testing negative for that is a very good thing, and I can only hope what it ends up being in reality is something far less malevolent. You're a bad ass, and you're going to keep being a bad ass of course; whether or not I tell you that ;).

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    1. In this case, negative is rather positivity indeed!

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  21. You are really a strong woman. In the middle of all these tensions, you could take time to write this post. I will pray to God that 2015 may bring you loads of happiness and love....

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    1. Writing always makes things better. You know what they say, share the load and the burden will lessen. I truly believe in that. Thank you for your prayers. ;-)

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  22. Sounds like you need a couple of hex bags to me lol....but what self respecting bacteria wouldn't want to be inside a wickedly sexy witch like you :D XXX

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    1. Yes. And ice cream. Lots and lots of ice cream. ;-D

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    2. Exactly Gina! The Will of a Powerful Wickedly Hot Vixen is no place for the mealie wimp ass bacteria! We all may become absence from time to time but in need...only a click away!
      Gina's magic and our warmest wishes for the Very Best Merry Christmas ( sexy Soltice)
      πŸ·πŸ·πŸ·πŸ·πŸ·πŸ’–πŸ’–

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  23. be well, dear Magaly. sending love.

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  24. Sending you lots of love and light and hugs, Lady. I've been keeping a candle lit for you and despite my disappearing-reappearing acts, you're in my thoughts and prayers. *hugs*

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    1. It is so good to read you, Autumn. I was just talking about you the other day (I saw a boy who looked just like your little angel and wondered how you were doing). Hope all is well. Thanks sooo much for the thoughts, prayers and the light!

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